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Join us in taking action for hereditary angioedema (HAE)

On May 16 and beyond, we bring awareness to HAE and celebrate the strength and resilience of the HAE community. This hae day :-), we’re inspired to take action for HAE by spreading words of encouragement throughout the community because we’re stronger when we lift each other up.

container with rolled up paper with quotes Capsule not actual size

Encouragement in a capsule:

like a message in a bottle—but cooler

As a way to promote positivity, we’re asking you—members of the HAE community—to send each other inspiring messages.

Here's how it works:

1
Select message

Choose the message you’d like to send from a list of inspiring messages and we’ll mail it, anonymously, to someone in the HAE community.

2
Sign up

Enter your information to receive a message or to send AND receive a message.

3
Smile

Know that you’ve taken meaningful action for HAE and that your message will make someone’s day.

1
Select message
2
Sign up
3
Smile

Select the message you’d like to send

Sign up to get involved

Enter your information below to send a message.

Your information will not be shared with anyone as all messages are sent anonymously.

All fields marked with an asterisk (*) are required
I’d also like to receive a message
I’d just like to send a message

Enter your information below to receive a message.

Your information will not be shared with anyone; we simply need your mailing address in order to send you a message.

All fields marked with an asterisk (*) are required

Smile! You’re done.
Thank you for your participation.

We have received your message and are working quickly to get it packaged and shipped. If you also signed up to receive a message, keep an eye out for your very own message in a capsule, which should arrive within 14 business days.

To learn more about ORLADEYO™ (berotralstat), visit orladeyo.com

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WHAT IS ORLADEYO™ (berotralstat)?

ORLADEYO (or-luh-DAY-oh) is a prescription medicine used to prevent attacks of hereditary angioedema (HAE) in adults and children 12 years of age and older. It is not known if ORLADEYO is safe and effective in children under 12 years of age.

It is not known if ORLADEYO is safe and effective to treat an acute HAE attack, therefore ORLADEYO should not be used to treat an acute HAE attack.

Do not take more than one capsule of ORLADEYO per day because extra doses can cause heart rhythm problems.

IMPORTANT SAFETY INFORMATION
Before taking ORLADEYO, tell your healthcare provider about all of your medical conditions, including if you
  • have liver problems or are on kidney dialysis.
  • are pregnant or planning to become pregnant. It is not known if ORLADEYO can harm your unborn baby.
  • are breastfeeding or plan to breastfeed. It is not known if ORLADEYO passes into your breastmilk. Talk to your healthcare provider about the best way to feed your baby while taking ORLADEYO.

Tell your healthcare provider about all of the medicines you take, including other medicines for HAE, prescription and over-the-counter medicines, vitamins, and herbal supplements.

Taking ORLADEYO with certain other medicines may affect the way other medicines work and other medicines may affect how ORLADEYO works.

Know the medicines you take and keep a list of them to show your healthcare provider and pharmacist when you get a new medicine.

What are the possible side effects of ORLADEYO?

Taking more than one capsule of ORLADEYO per day may cause serious side effects, including heart rhythm problems. A heart rhythm problem called QT prolongation can happen in people who take more than one capsule of ORLADEYO per day. This condition can cause an abnormal heartbeat. Do not take more than one capsule of ORLADEYO per day.

The most common side effects of ORLADEYO include abdominal pain, vomiting, diarrhea, back pain, and heartburn. These are not all of the possible side effects of ORLADEYO. For more information, ask your healthcare provider or pharmacist.

Talk to your healthcare provider for medical advice about side effects.

You are encouraged to report side effects of prescription drugs to BioCryst Pharmaceuticals, Inc at 1-833-633-2279 or to the FDA at www.fda.gov/medwatch or 1-800-FDA-1088. For more information, please see the full Prescribing Information including the Patient Information.
WHAT IS ORLADEYO™ (berotralstat)?

ORLADEYO (or-luh-DAY-oh) is a prescription medicine used to prevent attacks of hereditary angioedema (HAE) in adults and children 12 years of age and older. It is not known if ORLADEYO is safe and effective in children under 12 years of age.

It is not known if ORLADEYO is safe and effective to treat an acute HAE attack, therefore ORLADEYO should not be used to treat an acute HAE attack.

Do not take more than one capsule of ORLADEYO per day because extra doses can cause heart rhythm problems.

IMPORTANT SAFETY INFORMATION
Before taking ORLADEYO, tell your healthcare provider about all of your medical conditions, including if you
  • have liver problems or are on kidney dialysis.
  • are pregnant or planning to become pregnant. It is not known if ORLADEYO can harm your unborn baby.
  • are breastfeeding or plan to breastfeed. It is not known if ORLADEYO passes into your breastmilk. Talk to your healthcare provider about the best way to feed your baby while taking ORLADEYO.

Tell your healthcare provider about all of the medicines you take, including other medicines for HAE, prescription and over-the-counter medicines, vitamins, and herbal supplements.

Taking ORLADEYO with certain other medicines may affect the way other medicines work and other medicines may affect how ORLADEYO works.

Know the medicines you take and keep a list of them to show your healthcare provider and pharmacist when you get a new medicine.

What are the possible side effects of ORLADEYO?

Taking more than one capsule of ORLADEYO per day may cause serious side effects, including heart rhythm problems. A heart rhythm problem called QT prolongation can happen in people who take more than one capsule of ORLADEYO per day. This condition can cause an abnormal heartbeat. Do not take more than one capsule of ORLADEYO per day.

The most common side effects of ORLADEYO include abdominal pain, vomiting, diarrhea, back pain, and heartburn. These are not all of the possible side effects of ORLADEYO. For more information, ask your healthcare provider or pharmacist.

Talk to your healthcare provider for medical advice about side effects.

You are encouraged to report side effects of prescription drugs to BioCryst Pharmaceuticals, Inc at 1-833-633-2279 or to the FDA at www.fda.gov/medwatch or 1-800-FDA-1088. For more information, please see the full Prescribing Information including the Patient Information.

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